In a recent survey, The Washington Post asked white women and black women about their outlook and priorities when it comes to issues such as money, religion, and marriage. And in many cases, they found very big differences. But when it came to one issue, there was no disagreement at all. You guessed it: Caregiving.
Nearly two-thirds of both African-American and white women worried about family members suffering from chronic disease, according to the survey. And half worried about being responsible for an aging family.
The Post survey, which was focused on black women, did not look at Hispanics at all. But in 2008, the National Alliance for Caregiving did survey Hispanics. And while the details were different, the story was pretty much the same. About a third of Hispanic households had at least one caregiver and three-quarters are women. That suggests the overall percentage of family caregivers is a bit lower than the population at large while the percentage of women is somewhat higher. But their experiences would be familiar to the white and black women inteviwed by The Post.
If you are a woman–no matter your race, educational level, or income–caregiving responsibilities are never far from your mind. It may be a reflection of how the country has changed–and how it has not– that black women now worry as much about being victims of discrimination as they do about caring for aging relatives.
Yet, while the U.S. has made great strides since the 1960s to end racial discrimination, and since the 1970s to reduce gender discrimination, it has done surprisingly little in recent decades to help alleviate the burden on caregivers. If anything, in some respects the nation seems to be backsliding.
For instance, the House of Representatives is likely to vote later today to repeal the CLASS Act which, for all its flaws, had the potential to help support the care needs of the frail elderly and other adults with disabilities. While CLASS will remain alive until the Senate follows suit, its future is limited at best. And few in Washington are exploring alternatives.
At the same time, there is little chance Congress will vote this year to reauthorize the Older Americans Act, the federal government’s primary tool for supporting the non-medical needs of the elderly. Senior centers, job training programs, Meals and Wheels and other food programs, as well as information services are all funded by the law, which is about to expire.
That doesn’t mean Congress would stop funding these programs. But without the act, it will be easier for Congress to slash them. In recent years, budgets for many Older Americans Act programs have been frozen. And they are likely to be targeted for deeper cuts.
Working women pay a financial, emotional, and physical price for caregiving. They suffer high rates of depression and illness. When they take on a greater share of the caregiving burden, they often must cut back on their own working hours and sometimes even quit their jobs. That not only reduces their curent houshold income but also means they’ll have less from Social Security, pensions, and other retirement income when they age. And that, in turn, will place a greater burden on their daughters.
That’s bad news, no matter what your race. The challenge for society is to find ways to relieve their burdens in an era of fiscal constraints.
“The challenge for society is to find ways to relieve their burdens in an era of fiscal constraints.”
Howard, May I add this statement as a headline in my blog? Fabulous and an excellent start for the conversation!
At Caregiver Access we are working hard to create a new profession, specifically designed to assist the Family and Informal Caregivers. We have all been Caregivers ourselves and know only too well how hard it is for long term Caregivers in the present social climate. It’s very bad news that things may get worse before they get better but we humans are a resiliant bunch and usually find ways to help each other out.
Its too bad that families don’t/can’t take care of their aging parents at home like we used to (in the U S ) and like they still do in other cultures. I am referring to the Older Americans Act. Of course, there should be government help for the disabled.