My dad, who had congestive heart failure, lived on the second floor of a garden apartment building that had no elevator. As the disease made him weaker, he could no long walk down the stairs. And for the last year of his life, he was trapped in his own apartment. An “outing” was a slow walk, and eventually, a wheelchair ride about 100 feet to the end of the outdoor catwalk outside his door.
I got thinking about my dad when somebody called the other day asking about isolation among seniors. And it reminded me about what a huge–and widely ignored–challenge this is. We worry, rightly, about our parents’ safety and financial security. But those of us who are caring for our parents may think too little about the pain of isolation in old age.
My parents never considered leaving their apartment. With the help of a home health aide, my mother made sure my dad was comfortable and well cared for. My wife and I visited regularly. But my dad, who was a gregarious guy, must have been terribly lonely.
While we all want to age in place, we forget that loneliness and isolation can be a huge problem. As we become more frail, our friends stop visiting (perhaps because they are slowing down too, or perhaps because they don’t want to see their own futures). It is a key reason why losing the inability to drive is so traumatic. Finally, like my dad, we may no longer be able to leave our home at all.
Yes, by remaining at home we are maintaining that all-important independence. But we may be paying a price. It is a particular problem for elderly widows but men suffer too. And the victims are often caregivers as much as those receiving assistance.
In Frances Norwood’s powerful book about death and dying in the Netherlands, The Maintenance of Life, she describes “social death,” where those nearing the end of life lose those personal connections to others that are so essential to living.
What can we, as family caregivers and as a society, do to ease this pain? Sadly, many traditional government-funded services are being shuttered in the wake of budget cuts. As I wrote recently, California will stop funding more than 300 adult day centers, a key resource that not only helps seniors but also provides much-needed respite for their caregivers. Similarly, public transportation, already insufficient, is being scaled back.
So what can communities do?
Volunteers can make a huge difference–making friendly visits or phone calls, or offering rides. Formal organizations such as senior villages, faith communities, and fraternal organizations, as well as informal groups of neighbors can help. Engaging seniors as volunteers, giving them an opportunity to stay active and contribute to their communities is a powerful defense against isolation. None of this requires much money, but it does take a bit of time.
Sometimes, staying at home is not the best option. Senior communities of all kinds, assisted living, continuing care communities, and–yes–even nursing homes, may be more appropriate, in part because they can be less isolating. The time may also come when some seniors need to leave their home and move closer to an adult child.
There are many cures for isolation but they all start by recognizing the problem.
[…] excellent blog post by Howard Gleckman, the author of Caring for our Parents, called isolation among seniors “a huge […]
Howard,
You’ve hit the nail right on the head! Sometimes aging in place produces less independents, freedom, social interaction or experiencing life. Folks get so attached to their homes because of what “home” represents, never realizing that life exists outside of the four walls they’re confined in.
My father cared for my mother with Alzheimers for four years. When she passed away he was 85 years old. As exhausting as it was, caring for her gave him continued purpose in life. Over the next five years he slowly began to decline, until finally, just this past July 27th, he passed away a mere shadow of his former self. Over those five years he lived in an assisted living apartment. He refused any of the available services and felt awkward talking to the people there. While charming, he always struggled with making friends. My brother and I would visit him everyday, alternating visits. Even so, our short two hour visit still left him with 22 hours to suffer through.
I cannot imagine what it must be like to experience each and every second identical to the one before. To live this way for a week would be mindblowing, but to experience it over a number of years is unbelievable.
Towards the end we were able to get some work done to my brother’s home and my father moved in. Within three weeks he was showing improvement, gaining weight and flirting with the gal at the deli! Unfortunately, soon after bladder cancer was detected and it was already too late to hope for improvement. This is tragic in that my father’s life could have ended on a much sweeter note had we recreated a true family atmosphere for him sooner.
What is needed is a fresh look at what many refer to as board and care or residential care homes. The possibilities that this elder living option holds is remarkable and basically untapped!
What if we take the fun, vibracy, social interaction that takes place in a larger senior community and offer it to a handful of seniors living in a lovely large house…together as a family! What if self expression and re-awakening personal passions is focused upon? And, how about engaging them in community service…offering an opportunity to bond with each other, build lasting memories and regain a sense of purpose by playing a vital role in their community? All this can happen in a residential home where there are three or four seniors living with a family, sharing holidays, baking cookies, living life together. No, there isn’t a 24 hour doorman and there is no hair salon…but there would be love, comradery, a sense of belonging to something that is personal and theirs and self defining in a positive way.
I’m currently working on a home just like this. It is my biggest dream and prayer that it becomes a success. Hopefully, it will and in years to come I will be able to help others start such homes.
What is so disconcerting is that those who live alone are so hard to find. We in this group gather here and discuss these issues, meanwhile they are out there thinking that no one….no one cares for them at all. How do we go about locating these isolated individuals who live like dormant flowers desperately in need of blossoming once again?
Jenny
Jenny, sounds like a great concept.
Hello Howard,
Thank you for raising this important issue. My Dad recently passed away in May of 2011 and the last year of his life was very difficult. He was,like your Dad,a gregarious, social man who loved to talk and enjoyed an audience. My Mom and he lived in their own apartment(which they loved and kept meticulously clean but homey) until my Mom passed away at 85 years of age. Up to that time, my Dad could drive and would love to go to visit friends and his brother in law. They would talk about old times and the news of the day. After my Mom died, my Dad went into a seniors’ home because his eyesight was failing, he could no longer drive and he had to be on oxygen 24/7. Fortunately, he met a lovely lady there and they would have meals together in the beautiful cafeteria (which was more like a 5 star restaraunt). However, she died about a year later of pneumonia and he was devastated. He missed my Mom and now his new best friend was gone. His friends and relatives did not come to see him for a variety of reasons. He liked to tell me the names of all of his friends who had died and how he felt lonely. He had always been the “life of the party” and played bridge and golf but he was very limited in his last couple of years. He did not want to make new friends for fear that they would die and leave him too. He was angry and sad and pushed some people away, even his own children. This was very difficult to witness and pained me greatly. I tried to soothe his fears and anxieties but it seemed pointless at times. He would say” I just want to be with Mom”. They were married for 65 years and everyone including my Dad thought he would go first. Of course my Mom had spoiled him but still, I could not help thinking that it would be so difficult to remain optimistic with all the health issues he had. He also had a colostomy bag from a colon cancer operation and had to empty it four times a day even though he could hardly see. He was a very proud man and would always get dressed up and shave if he knew I was coming to see him. It is hard to hang on to your dignity when you age. It is hard to believe that you are loved and cared about when so many of your friends and family no longer come to see you. In the end, it really broke my Dad’s heart and it made me think alot about the future we all face if we live long enough.
Sincerely
Elizabeth
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What if we take the fun, vibracy, social interaction that takes place in a larger senior community and offer it to a handful of seniors living in a lovely large house…together as a family! What if self expression and re-awakening personal passions is focused upon? And, how about engaging them in community service…offering an opportunity to bond with each other, build lasting memories and regain a sense of purpose by playing a vital role in their community? All this can happen in a residential home where there are three or four seniors living with a family, sharing holidays, baking cookies, living life together. No, there isn’t a 24 hour doorman and there is no hair salon…but there would be love, comradery, a sense of belonging to something that is personal and theirs and self defining in a positive way.
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