Like millions of others, Kathy Kenyon is trying as best she can to care for her parents—both of whom have some dementia. The health care system won’t let her.
In a presentation to the prestigious Institute of Medicine a couple of weeks ago, Kathy described in painful detail what is it like to try to navigate the disorganized maze we call health care.
Kathy has enormous advantages over most caregivers. She was general counsel of a major health system so she understands the medical business and is an experienced advocate. She is comfortable with the medical and legal jargon that baffles many caregivers. Her husband is one of the nation’s most knowledgeable long-term care policy analysts. She has a supportive family. And her parents have the financial resources to pay for quality care.