In the always-complex, often-painful world of family caregiving, there is no worse advice than this: When your parents need help, you must reverse roles and become their parents.
Here is the reality: If you are the adult child of an aging parent, you will always be their child and they will always be your parent. They may need your help with the most intimate personal care. But you will never become their parent.
I saw this all the time when I was researching my book Caring for Our Parents. I had the opportunity to spend as long as two years with people who needed assistance and their family caregivers. I saw successes and sad failures. Often the difference was the ability of adult children to understand their role.
I was thinking about this after seeing Courtland Milloy’s column in this morning’s Washington Post describing his experience as a long-distance caregiver visiting his parents in Louisiana.
He wrote, “Some elder-care experts say that when aging parents stop acting in their best interest, the grown children must “reverse roles” and simply make them do the right thing.”
As he learned, this advice is so wrong on so many levels.
To start, what is the “right thing?” Who are you to decide what is right? As a matter of law and, I believe, ethics and morality, each of us gets to decide the “right thing” for our own life, as long as we are cognitively able and our choice does not harm others.
A wise man once said it like this: “When I was 22, I did some things my parents thought were remarkably stupid. But I was an adult and they were my choices. Now, my parents may be doing some things that I think are remarkably stupid. But they have the same right to make mistakes as I did.”
Put yourself in the position of an aging parent. As you become physically frail and cognitively limited, you lose control of your life. All those day-to-day decisions that healthy people take for granted—when to go to the movies, when to eat, when to walk across the room and even when to go to the bathroom—are increasingly shared with others. It can be embarrassing and demeaning.
And it is why a big part of frail old age is about maintaining independence and respect.
Now comes your child. He may be 50 years old, but he is still your child. And he is saying, “Mom, you’ve got to go to the doctor. You’ve got to stop driving. You’ve got to move to assisted living.” He may have just parachuted into town for a few days. He seems rushed and impatient. And you, who on some level still view your son as the 18-year-old who left home to go to college, are resentful, embarrassed, and maybe even angry.
Needless to say, this is not a great environment in which to make decisions.
What’s the alternative? As much as possible, share decision-making. As the adult child, never start any sentence with the words: “Mom, you’ve got to.…” Instead, try, “What do you think we should do….” Help them choose. But work together as much as you can.
Of course, if a parent or other relative is emotionally or cognitively incapable of making decisions, you may have to step in. But that is much less common than many suppose.
To his credit, Milloy finally got it, despite starting out with that awful “reverse roles” advice.
Like the proverbial bad penny, this parenting your parents business keeps coming back. Years ago, when I was writing for Business Week, an editor suggested a consumer caregiving column. It would be called, you guessed it…Parenting Your Parents. I told her I’d love to write the column but the name had to go. That was the last I heard about the idea.
And let’s hope this is the last any of us hear about the worst advice a family caregiver can get.
I hear this from a hospice worker at the Washington Home many years ago and never forgot it.
An adult child was visiting a parent in the end stages of life. The parent was no longer able to speak. The child broke down and began to sob, and climbed into the bed. The dying parent put her hand on her child’s shoulder and just started patting to comfort her. Again and again and again.
you’re so right – it’s about advocacy, not parenting….conversation, not dictation
Howard is SO right. Let’s all bring back dignity and respect for our elders – and that means OUR OWN PARENTS! When I assess a new case for home care, I share a novel suggestion with loving and frustrated adult children: instead of confronting your parents with “what is best for them” in your own mind, ask them if they would do something for you. Don’t insult Dad by saying, “YOU NEED home care.” Try, “Dad, I have to go to work and even though you are living independently, all day I worry about you. Would you do something FOR ME? Would you let Pat come by and help you with … and just check that everything is okay?” This approach is honest, and so much more acceptable!
I found myself bristling, ready to think the author was advocating allowing parents to harm themselves. instead, he presented a thoughtful message about loving and respecting our parents. The only disappointing thing about this article is the lack of comments. I should think this is an important topic. (Especially when one considers the prevalence of medications confusion among the elderly, often leading to injury or premature death.)
I agree with you for the elderly person that has full capacity. I disagree for the older elderly client with capacity issues. You did put a caveat there that covers what I do most of the day. As a Certified Elder Law Attorney, I and my client’s families have to do what is best for the elderly person. Granted, my clients are older and usually have progressed cognitively to the point where they do not make good decisions. I am all for autonomy for the elderly person who has their capacity and may be spending money in a way that the kids don’t approve of. However, there is a time where the kid has to become the “parent” and care for their aging parent and protect them just like the parent did for the kid when they were young.
I will start by saying that conversations between child and parent are emotionally charged from the start. That forms a poor basis for open, honest discussions resulting in positive outcomes.
It is advisable to seek help from professionals like Geriatric Care Managers in navigating the myriad of options available to our elderly.
I am not sure whether to agree or disagree. It seems to me that the age of the child and capacity of the elderly parent is the key. Parenting an older child is very much about asking thought provoking questions, giving them room to become who they want to be, but also giving your own advice for their safety and well being sake. I think the same holds true for an elderly parent who can and does understand the risks or rewards, intended and possible unintended consequences of their choices. An infant or young child must be guided and overruled at times as does an elderly infirm parent. I think role reversal is a tool that has to be adapted to each situation as it presents itself.