I spent this morning at an interesting Capitol Hill conference on an important—but often ignored —topic: What role should home health aides play in the delivery of care to people with chronic disease?
Health care providers and policy experts are spending lots of time thinking about ways to better integrate medical and personal care. They are finally recognizing that people with chronic disease, especially those who also have functional limitations, need a range of supportive services to stay home. Medical treatment alone is not nearly enough.
Most everybody agrees on the goal: Keeping these people as healthy as possible, and avoiding costly and often debilitating hospital and nursing home stays. And there is also growing consensus that one way to achieve that goal is with care teams.
Often, that means physicians, nurses, and social workers. Sometimes, teams also include pharmacists, physical therapists, chaplains, and nutritionists. But these designs often leave out key players: patients and their families themselves, and home care workers.
This morning’s program looked at the role of aides in those teams. It was sponsored by the Service Employee’s International Union (SEIU) and the Paraprofessional Healthcare Institute (PHI), an organization that both trains and employs aides.
PHI president Steven Dawson made the case for the importance of aides in integrated care teams. At the very least, they can provide valuable information to medical professionals about changes in a clients’ health status. With better training, they can do much more than that, including coaching clients, formally monitoring their health, administering medications, and managing medical equipment.
But Dawson conceded that at least three barriers continue to limit the role of aides. The first is the debate over much they should be allowed to do. Would even well-trained aides be acting as unlicensed nurses? These are hot-button issues, as I learned a few months ago when I blogged on the subject.
The second problem is what Dawson called the “bias of low expectations.” Too often, doctors and nurses assume aides are incapable of doing more than basic personal care, so they don’t ask them to do more. My own sense is that teams themselves will break down this bias. As nurses and doctors learn how much aides can do, and how much they know about their patients, they will come to respect their skills.
Finally, Dawson noted the structural problems. Traditional fee-for service Medicare is not designed to pay for aides beyond very limited hours after a hospitalization. But as health systems are rewarded for keeping patients as healthy as possible—a key element of the 2010 health reform law– money may become available to build an infrastructure for quality home care. And that could include well-trained, fairly paid, aides.
Building integrated care teams in the current health and long-term care systems won’t be easy. The barriers Dawson acknowledged—and some others– are very real. But it is time we learned what aides can do if given the chance, and whether their participation in care teams can both improve patient health and save money.
I agree with you. However, in working in the aging field these last 23 years and the personal experience with my mother, two barriers to good, consistent care from home health aids are:
1) pay scale and benefits.
It is very difficult for home health aids to get by on $10 or $11 an hour or less, often times paying for their gas, or not getting paid sick time or vacation. Being a caregiver is very draining physically and emotionally. Of course, the flip of the coin is it still has to be affordable for the patient.
2)high turnover and call-offs with no subs.
Being a home health aid requires the aid be able to handle taking care of a person’s normal day to day personal needs, the house, the errands, and get to know the patient well enough to be aware of changes in their health & physical status, obstacles to their mobility, attentiveness to their emotional needs, and consistency in attendance. They also need to be able to communicate well with the family.
Some of our clts see a different aid every week. Others may have a consistent aid, but when she cannot be there, the clt either is uncomfortable with a stranger subbing, or none is available.
In Ohio we could use aids trained and certified to help with medications, test blood sugar levels and administer insulin to patients who have tremors or other problems that affect their ability to take their meds when family can’t be there and medminders aren’t appropriate.
I agree with you to a point. I have been working in the aging field for 14 years and the personal experience as a personal care attendent for two home bound seniors – One of which is my Mother. Consistent aid attentiveness and attendance was a HUGE issue for our family and one way we solved the problem was me being paid to be her caregiver – I found I enjoyed it so much I have other clients as well and even though the pay is very low I would not take on the responsibility of med management, administration or diabetic care because that is the role of a nurse.
charles myrick…
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Thanks for great artlice…
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